After working exclusively on breast cancer-related issues for several years, I have decided to broaden my horizons with a new blog,A Time For Such A Word. I couldn't just delete all the blood, sweat, and tears of this work though, so please feel free to browse the archives.
I did it. You can too. (if you qualify). They are asking some really important questions about the long term psychological and physical effects of breast cancer and its treatment.
CALLING ALL FEMALES IN THE UNITED STATES WHO HAVE OR HAD BREAST CANCER
Posted by Dr. Susan Love at 4:02 pm
We need women in the United States who underwent surgical treatment for ANY type of breast cancer, including LCIS, DCIS, and Stage IV metastatic breast cancer, to take part in an on-line survey designed to explore the impact of breast cancer surgery on long-term health, quality of life, and satisfaction with care. A research team at Duke University will use the information collected from the survey to help guide surgical decision-making and optimize the long-term health of women newly diagnosed with breast cancer.
Please read on to learn more about what is involved and who can participate. And please don’t forget to tell any of your female friends or family members ANYWHERE IN THE US who are breast cancer survivors about this on-line study!
What’s the study about?
The overall goal of this study is to learn about the impact of breast-conserving surgery/lumpectomy, mastectomy, and mastectomy with breast reconstruction on a woman’s quality of life, general health care experience, and satisfaction with care and outcomes.
If you’re interested in this study, you will be asked 5 questions to see if you meet the criteria to sign up for the study. If you are eligible to participate, you will receive a link to the study. If you sign up for the Evaluating Patient Reported Outcomes in Breast Cancer study, you will be contacted via email by the research team with instructions on completing the on-line screening form and surveys.
You will be asked to provide basic demographic information (such as age and ethnicity) and answer questions about your breast cancer diagnosis and treatment, overall health, problems or complaints related to breast cancer and its treatment, and the impact of cancer on your life. The full survey will take approximately 30-45 minutes to complete. You can complete the survey in more than one sitting; you can take breaks as needed.
Who is conducting the study?
Dunya Atisha, MD, and Amy Abernethy, MD, at Duke University Medical Center, Durham, NC
Anywhere in the United States – this is an on-line study which you will be able to complete either on a desktop, laptop, or iPad-like technology.
Who can participate?
You can sign up for the Evaluating Patient Reported Outcomes in Breast Cancer study if you meet ALL of these MAIN criteria:
• You are a woman over the age of 18
• You have had a previous diagnosis OR a current diagnosis of breast cancer of any stage. This includes those who have had a previous OR current diagnosis of LCIS, DCIS, or Stage IV metastatic breast cancer.
• You had surgery to treat your breast cancer
• You have access to the Internet and are willing to complete an on-line survey